Other Support Groups and Associations
ATLHA ONLUS – Milan, Italy
A support group for families who have a child or adult with a disability. ATLHA ONLUS provides ‘free time’ and ‘leisure’ activities in Australia and beyond and is officially affiliated with Aussie Hands.
http://www.atlhaonlus.eu/articolo.php?id=0&lingua=1
The Association for Children with a Disability
Provides information, support and advocacy to families with a child or young adult with any type of disability or developmental delay across Victoria. Services include a free telephone support service and information resources including the booklet Helping You and Your Family.
Further Information
Suite 2, 98 Morang Road
Hawthorn VIC 3122
Phone 03 9818 2000 begin_of_the_skype_highlighting 03 9818 2000 end_of_the_skype_highlighting
Fax 03 9818 2300
Web: www.acd.org.au
http://www.acd.org.au/home/indexb.htm
The Association of Genetic Support of Australasia Inc. (AGSA)
AGSA is a network of people who are affected by genetic conditions, either directly or indirectly. Our job here is to make sure that you have someone to talk to, and you have other places and people we can put you in contact with to make your journey a little easier.
Further Information
66 Albion Street
Surry Hills NSW 2010 Australia
+61 2 9211 1462 begin_of_the_skype_highlighting +61 2 9211 1462 end_of_the_skype_highlighting
http://www.agsa-geneticsupport.org.au/
Carers Australia
http://www.carersaustralia.com.au/
C.H.I.L.D - Children Having Infant Limb Deficiency
Organisation run by parents, families and friends of those whose lives have been affected one way or another by limb differences.
http://www.childorg.net.au/
Connecting Up Australia
(formerly known as CISA - Community Information Strategies Australia Inc.)
Main site: www.connectingup.org
Infosearch: www.infosearchweb.com
Eventspool: www.eventspool.com
DonorTec: www.donortec.com.au
Ectodermal Dysplasia Society
http://www.ectodermaldysplasia.org/
GNSV (Genetic Support Network of Victoria) Australia
www.gsnv.org.au
Helping Hands Foundation - USA
A not-for-profit support group made up of parents who have children with upper limb differences and who are concerned with the challenges facing the child and the entire family
http://www.helpinghandsgroup.org
Contact: info@helpinghandsgroup.org
Hypoplasia
...septo-optic dysplasia support group with email list of parents who have children with SOD and optic nerve hypoplasia...
http://www.focusfamilies.org/
I-CAN (International Child Amputee Network) online - USA
A mailing list for parents of children with either acquired or congenital limb loss. This mailing list offers an opportunity to share experiences with other parents. It is the mission of I-CAN to provide parents with a place to contact experienced parents and adults who grew up with a limb deficiency.
http://www.child-amputee.net/index.htm
Limbdifferences.org (previously Superkids)
Provides practical information and emotional support to the families and friends of children with limb differences
http://limbdifferences.org/
Contact: editors@limbdifferences.org
Limbkids Support Association Inc – VIC TAS.
Limbkids is a voluntary non-profit organisation of parents, professionals and interested people concerned with the care of children with limb differences. Email: limbkidsvictas@hotmail.com or call Vicki Priscina, Albury, NSW, 02 6026 3124 (after hours)
Limbkids Support Association Inc - QLD
Limbkids Support Association Inc is a non-profit, voluntary organisation comprised of parents, professionals and interested people concerned with the care of children who have congenital or acquired limb differences.
Contact Mark Maki-Neste, President@limbkids.asn.au
Website: http://www.limbkids.asn.au
Contact: +617 5533 9754 begin_of_the_skype_highlighting +617 5533 9754 end_of_the_skype_highlighting
Limbs 4 Life
http://www.limbs4life.com
On the Other Hand - USA
Provides information, support, and suggestions for parents, relatives, and friends of children with hand anomalies
http://www.ontheotherhand.org/
Contact: OT@ontheotherhand.org
REACH - UK
An association for children with a hand or arm deficiency. REACH is located in the United Kingdom.
http://www.reach.org.uk
Contact: reach@reach.org.uk
SIBS (Sisters Individuals Brothers)
Sibs often develop a range of admirable personal qualities and feel enriched by the experience of growing up in their family. Some Sibs are more tolerant and understanding of individual differences, take great pride in their brother or sister's achievements, and go on to work in helping professions. On the other hand, Sibs also face a range of extra challenges, and many report feeling guilty about being able to do things their brother or sister can't, being embarrassed at other's reactions to their brother or sister, or being angry about receiving less attention that their brother or sister. Sibs also need the chance to feel that there are others out there in a similar situation. It can be invaluable for Sibs to meet other Sibs face to face at sibling groups or camps, or link up with other Sibs through one of the many sibling websites.
www.siblingsaustralia.org.au
Superhands Network - USA
Read the stories of children born with upper limb differences, and the heroes who have overcome their challenges to lead happy, successful lives! http://www.superhands.us/pages/links.html
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